I said, possibly 3 posts ago that I would describe how Fibromyalgia is for me, or at least how the whole collection of things that I suffer from, is for me. I would like to, so that if someone will comment with their symptoms, then maybe it will help some of us or those of us that don’t know what we’re feeling, not feel so alone or like a freak!
Obviously I know that I’m feeling pain but is it Fibromyalgia or did I knock myself without remembering? Is it my back condition or could it be the vitamin d deficiency? But then the biggest problem that most of us face is that we all have different symptoms. It’s hard to have a condition that when put next to someone else with the same problem, lifestyles and abilities vary greatly.
I thankfully get a lot of my affirmation from my sister. She doesn’t have Fibro but she is a Foot Health Care professional and she has a number of patients that suffer from Fibromyalgia. When I say ‘my god, my shoulder really hurts tonight. It’s really bad when I press there’, she’ll say ‘one if my fibro patients is similar’. It stops my mind wondering to what on earth had I done and I just get on with it and mostly, it eases and somewhere else flares.
What I wanted to ask tonight though, is, are you a Spoonie? Have you heard of this term? Have you read about it and do you identify with it?
I started seeing this term used on Instagram (a photo sharing social network site) when I first looked to connect with other sufferers. You hashtag certain words that then become searchable and I often saw #spooine #spoonies.
It took me ages to work it out- I wondered if it were an abbreviated name of another condition (!) and then google sorted me out!
The Spoon Theory is a an explanation that Christine Miserandino used to explain to her friend, how it feels to live with Lupas. It is a great way of using terms and visual objects to explain something that is sometimes hard to put into words. The majority of the time, all I can say is that ‘I hurt’ or ‘I’m so tired’ or ‘I just don’t feel very well’ helpful. Not.
Specifically written about her experience with Lupas, sufferers of a number of different chronic conditions can identify, including of course, Fibromyalgia.
I really like the explanation. I’d like to share it with my ex husband as we have a toddler together but I don’t want to open a can of worms just yet!
It *might help him to understand what I go through and face whilst trying to be the best mummy that ever lived (I wish) but I’m doubtful that it’d work.
If you have any family or friends that struggle to understand then it might be really useful to print it off and just let them read it.